Saturday, November 12, 2016

Updates

Timmy was a little sleepier today than they want him to be since they moved his meds from the n-d tube to the g-tube (stomach instead of intestine, so it absorbs better). The solution is to give him 1/2 doses and stretch the meds out to 8 hours instead of 6 hours. It seems like this may be a drastic reduction (mathematically - 37.5% of the medication he was getting), so we are praying that he does well with the new adjustments. It would be nice to have him on lower doses now.

Timmy's feeds are almost completely moved over to the g-tube, and he seems to be doing well with them, so that will make one more step checked off on the 'going home' checklist.

As far as the other kids, I finally got to sit down with them and talk to them about where things stand with Timmy. (No surgery, and unless God intervenes he might not be with us long) Either I am really good at explaining things, or some of the kids are just processing. The older two have known since last Thursday, and some of the others might have put 2 and 2 together, but I could see on some of their faces that it was hitting them hard. Please pray for them as they process all of this. The first response of the kids (from the 3 year old, of course) was that we should pray for Timmy. I waited until today because I had the kids alone and at home, and 4 days with them before my parents come to watch them again. Hopefully, they will get the questions worked through in the next few days.

Jen and I are doing well. We enjoyed a whole week together up in Rochester while my sister and her husband were up (on top of grandma and grandpa taking 2 days and nights with the kids). It was nice for us to process together and be able to talk about all the options that are before us. We are on the same page, which helps immensely. We are praying things move along so that we can all be back together at home soon. We'll take what comes and be thankful in all things, but quickly getting home would be a super big blessing.

Thanks for all your prayers and support. We can't begin to thank everyone for all the love that has been showed to us. We are very grateful for great friends, families, and even friends we haven't actually met. God has been very good to us,


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