Last night before bed:
This morning:
Timmy has had an excellent nurse the last few days. They have all been great, but we like Dan's "Let sleeping babies lie" philosophy. To get a child well, you don't disrupt their sleep unless it can't be helped. I guess you could call it a holistic approach to medicine, or just common sense. As busy as these nurses are, I can understand with all they need to do that they have to do certain things when they have the opportunity, which is what makes Dan such a special nurse. Tomorrow we travel up, Timmy gets another echo done (we think), and they decide on increasing nutrition or leaving it stable.
His oxygen was up overnight, so they have reduced the percentage of oxygen in his nasal canula. We are hoping this means the heart is down in size, resulting in less regurgitation in the heart. We will find that out tomorrow if they do another echo. He is bundled up this morning because his temperature had gone down, so they are back to keeping him toasty warm. He does seem to sleep better bundled, so it should be a nice restful day in the PICU for Timmy.
We continue to trust God through this and are learning and growing. While we don't like the circumstances, the opportunity for growth is constant and pretty much unavoidable. It is weird to be grateful for the opportunity to grow, but I guess that is part of the peace of God that passes understanding that comes when we give it all to God. I hadn't thought about Timmy's name and its meaning for a while, but a friend reminded me that his name's meaning was certainly appropriate through this. Timothy means "Honoring to God." This is our prayer and our goal. Thanks for praying.
His oxygen was up overnight, so they have reduced the percentage of oxygen in his nasal canula. We are hoping this means the heart is down in size, resulting in less regurgitation in the heart. We will find that out tomorrow if they do another echo. He is bundled up this morning because his temperature had gone down, so they are back to keeping him toasty warm. He does seem to sleep better bundled, so it should be a nice restful day in the PICU for Timmy.
We continue to trust God through this and are learning and growing. While we don't like the circumstances, the opportunity for growth is constant and pretty much unavoidable. It is weird to be grateful for the opportunity to grow, but I guess that is part of the peace of God that passes understanding that comes when we give it all to God. I hadn't thought about Timmy's name and its meaning for a while, but a friend reminded me that his name's meaning was certainly appropriate through this. Timothy means "Honoring to God." This is our prayer and our goal. Thanks for praying.
We are praying for you all. What has to happen for him to be able to have his first surgery? I'm sorry if this is a dumb question. Thanks for the blog updates since we aren't on fb.
ReplyDeleteEmma, right now that is the big question. He has been in 'heart failure' - excess fluid on heart and lungs, so reducing that is first. If the heart shrinks, the regurgitation (backwash between sides of the heart) will probably go down, making him function better. The one side of his heart is underdeveloped, and would need to get bigger for one of the surgeries they have suggested. Another surgery might help buy time for the other side of his heart to get bigger. Another surgery might be an option if neither of those will work, but it wouldn't have a great chance of a successful outcome. And the fourth option we have been told is the possibility of not having any surgery. So, it is definitely not a dumb question, just one with a very complicated answer. Thank you for praying!
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