Timmy was a little fussy, but mommy and Timmy are home.
Larissa is enjoying her view after 8 weeks of no Timmy at home.
We had a few hiccups so far. A medical supply company that couldn't deliver a piece of equipment, but failed to tell anyone until asked specifically about each prescription. (The PICU home people have already remedied it by ordering from another company and we will have it tomorrow) Two of Timmy's supplements are missing and we could only get one filled at this late hour. All efforts to secure a compounded sodium chloride solution have come up empty and will have to wait until tomorrow.
Now that we are home, we have a request. Please do not drop by for a visit. Between the VNA and paliative care coming in, feeding schedules, learning the medication routine for Timmy, and tracking down missing prescriptions and equipment, we are swamped. We need some time to learn the routine, to figure out how we can make this work. A visit at this point would be more of an interruption than the blessing that you might intend for it to be. Thank You.
I also want to thank a few people who made today easier. Heather from the hospital worked extra hard to secure all the stuff Timmy needed to get home and even took up the enraged stance at the ball dropping done by the medical supply company to save me from having to get my feathers ruffled. And Pam from the Walmart Pharmacy in Lakewood filled the prescription she could of the two we needed, and asked about Timmy. Not because she knows him, but because she has filled prescriptions for him before and she wondered how he was doing. After a short conversation, she told me that she would add her prayers to ours for him. Several others just continued doing what they have always done. Be here for our kids, take care of Timmy & Jen, help provide for needs, and just loving on our family in general. Even with the hiccups today, we are blessed.