Thursday, November 10, 2016

Baby steps

This is a good picture. It has Timmy, but it also has the first draft of Timmy's home care binder. This is our next focus, and it is nice to have the tangible proof that the hospital staff is working that way too.


Timmy is awake more often, and doesn't seem bothered by all the tubes,  although we are looking forward to losing more of them. The ventilator days are numbered, although that step is a few steps out. Converting his medications to coming through the g-tube will happen first, then weaning him from the vent, finally changing over one last medication are the steps as we currently know them. Feeds are currently being switched over to the g-tube, so progress is being made. How long the steps will take is anyone's guess. 

Still trusting God for daily grace, strength, and health. Still looking for miracle. Still thankful and rejoicing in God's goodness. Seven weeks ago things looked really bad, and today we have a plan to bring Timmy home. We are blessed.

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