Thursday, September 13, 2018


Playing with his hat, hoping someone will see him and take him outside.

He likes mother goose telling him nursery rhymes.

Not sure what this face was for....

He likes making her chew on his fingers.

He wasn't too happy that we were switching his clothes and trying all of his winter clothes on him.

Thursday, September 6, 2018


This may not look like a big deal, but, he used to scream just looking at other people swinging, now, he loves it. Tonight he was swinging for a good 5 minutes and was happy the whole time!

Making faces.

Picture with birthday mommy!

He loves licking watermelon.

Thursday, August 30, 2018

A few Timmy Pictures

These are a little blurry, but he enjoyed the ride in the van the other day. 

He still likes putting things under his chin. 

Wednesday, August 22, 2018

Timmy pictures.

Dressed up for church.

                                          And a couple pictures from the last two Augusts.
August 2017

August 2016

Thursday, August 16, 2018


Talking on his play phone.

Watching the wood get split. 

Enjoying being outside.

His new trick, everything goes under his chin. 

Tuesday, August 14, 2018

Making Gains in the feeding department

Timmy is feeling much better since struggling for a week or so with congestion and coughing fits.

Right before he got sick, we embarked on rearranging his feeds a little. Since we had been feeding 7 different times during the day (and each feed was multiple syringes of food for the g-tube pushed in in multiple pushes with 6 or 7 minutes between pushes of food), we had gotten to having problems with his tummy never quite emptying out, and having more gas issues. Since these seem to come up every month or so, once we recognize what is happening, we try to make a plan for things to go smoother.

This time, we knew that the fall schedule was going to be different for therapists, and with his older sister in college, different for help around the house. So we have reduced his feedings down to 5 or 6. The morning bone broth is followed pretty closely by the morning smoothie, so it is practically one feed now. Then, we have greater spacing between the rest of the feeds of the day, and are starting to further increase the amount he gets in a feed. Due to recent increases, we could reduce the number of feeds without reducing what he had been getting, and the changes look to mean we will be able to increase his feeds more in the coming days.

Since bouncing back from his congestion (pretty much just yesterday and today), the new feeding schedule seems to be working out well for him. We still have some changes to make to the food he is getting in the coming days, but changes are best tried when things are nicely evened out.

With another sibling headed off to college this fall (living at home, but away from home more), we have more adjustments to make in the coming days, and would appreciate your prayers for them. God has been so good, and we can't help but thank him every time we look at our little blessing.

Wednesday, August 8, 2018


What should I do with this?

I think I'll dump it!


Now I'll chew on this block.

Right now he has a little bit of a cold and isn't feeling the best sometimes.