We have learned that for every adjustment, it normally makes several more adjustments necessary. So far, the second attempt of changing the feeds over to the g-tube appears to be going well. His sedatives are also going in through the g-tube as of today, so there is monitoring there, as well.
The bumpy night came after an excellent day of him being awake more and looking around a lot. He got quite agitated during the night, requiring a couple of PRN (Pro re nata - as needed) doses of extra sedatives. The PRN doses are only used as needed, and give the nurses some help in keeping Timmy relaxed. The feeling is that the agitation may be withdrawal symptoms from coming down off of higher doses of the sedatives, but I guess we can't know for sure.
We know what the path looks like to get Timmy home, but we have no idea how long each step will take. It seems like there are a mountain of things to get ready before he comes home, but we just have to remember to take the steps required of us today. God's grace is given much like Timmy's extra sedatives - in those PRN doses. I'm so glad the one who administers the grace also decides when and how much is given, just as I am glad that the nurses caring for Timmy are instrumental in deciding when he gets some of his medications.
No comments:
Post a Comment