Saturday, October 8, 2016

Slow morning, good morning


We got mommy moved from the Ronald McDonald House upstairs to the one a mile down the road yesterday. It is very nice to have a place to stay that is so close to the hospital, but the move reminded us of how spoiled we have been. Mommy is adjusting well, she found out how to get a ride from security to the house after hours, and how to get back in the morning before the shuttle service starts. The shuttle runs at 9:15, 12:00, 1:00, and 7:00. Mommy likes to be there before 8, and often stays until about 8 at night. The new house has more rooms, has a full kitchen (triple kitchen, actually) for our use, a larger laundry area, and is quieter.

Timmy had a good night, and is holding steady on weight for now. The next evaluation is on Monday when they will do an echo again, and make decisions about adding more calories to Timmy's intake if he is not gaining as they would like. Since they have the water pill meds balanced off for now, they expect to see a rise in weight since they aren't 'squeezing' more water out of him. At least one of the doctors doesn't want to increase feeds, because it can sometimes lead to problems with diarrhea or spitting up, and then they have to hold feeds and even lose ground that way. I guess every aspect of his care is a balancing act.

Mommy's excitement (aside from a ride in a 'police' car (security vehicle, same thing)) was that the alarms went off in the hospital, it was announced that there was a "fire in the medical center" and the automatic fire doors closed. Fire trucks came in, but things went on as usual in the PICU. I guess the fire was fare from them.

I haven't mentioned recently that there are two ways to follow Timmy's progress. The blog at: TheHeartofTimmy.blogspot.com and the Facebook page at www.facebook.com/TheHeartofTimmy
When I post a blog post, it automatically posts to the Facebook page, so they have the same information. Occasionally, an extra post may get made on Facebook, but not very often. I just mention it to let you know you can pick the best option for you if you want to keep up with Timmy's journey.

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