Tuesday, October 4, 2016

Rounds Report

Timmy is all cleaned up and ready to face his day. He was down a little bit on weight today, but that is most likely a result of the adjustments to medications as they have continued to tweak things to find the balance they are going for in his body.

The goal for toady is "Fat and Happy." We are glad that he is smiling again, and even glad for when he is agitated. Lethargic is not a good emotion, and it tends to push all emotions to the side. Having a boy that goes through a normal range of emotions, and is falling back into a more normal sleep pattern is certainly an encouraging blessing.

Speaking of blessings, we have way too many things to be thankful for. Some of you have expressed concern over how mommy and daddy are holding up, so while we are far from basking in the glory of stress-free relaxation, we have been greatly blessed. Some of the things we are thankful for:


  • God's promises. Jen caught this rainbow reminder the other day
  • The support of friends and family
  • The prayers of God's people
  • The knowledge of medical professionals
  • The compassion of medical professionals
  • The generosity of people to the Ronald McDonald Charities 
  • The generosity of volunteers working for the RMD Charities 
  • The care and support of our church
  • The ability to let Jen stay with Timmy in the hospital
  • The ability to care for kids at home 
  • The help of others caring for the kids at home
  • Safety in traveling
  • Friendship of others in the PICU & PCCC in Rochester
  • Being able to find a treadmill in the hospital to use last week
  • Stairs - the ability to get some physical activity day to day in the hospital
  • Being able to get Jen out of the hospital for an hour yesterday
  • Musical staff that come sing to Timmy
  • Social workers to help with figuring out parking and badges

And I know I am missing things on the list, we are blessed.


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