Wednesday, October 12, 2016

Excited over 20 grams!

Yesterday, Timmy weighed 3.62 kg, today, he weighed 3.64 kg. In grams, that is 3620 grams to 3640 grams, or a 20 gram difference. If you aren't super familiar with metric units, that is about 7/10 of an ounce difference. That is similar to the increase from the day before. Not a huge amount, and our weight changes day by day and at different times of the day. To make the weight as accurate as they can, they weigh him in the morning, right before they give him his morning dose of Lasix. The feed and fluids going into him are going in on a continuous basis, so they can be pretty sure, even day to day, that when a small increase is shown, that he is gaining.

The plan continues the same, although with a little more detail in terms of time than we had before. They want to keep him on this routine (hopefully gaining weight and keeping medications and feeding the same) for a few more weeks. At that point, the options are still pretty open: surgery, adjustment, or even changing his medications over to oral doses to be able to come home. All of which looks and sounds suspiciously close to at least a month more of hospitalization.

They did an echo yesterday (even though they were going to wait a while before doing another one), and said that the regurgitation in the heart looks better, even though the size of the heart hasn't changed much. Less regurgitation means better flow of oxygen through his body and his heart has to work less to accomplish better results. All good news today in terms of his numbers, and how he is looking (inside and out).

They are also starting to send therapist (OT & PT) by to start working with Timmy on movement and strength things. Hopefully, that doesn't become another thing to disturb his sleep patterns, but it is good to start gaining some strength as well.

The Dr. filling Jen in commented that Jen has just been lovely about this all despite the fact that this is going o take time and require a while longer in the hospital. It is awesome when God's grace is evident. Not all moments are good moments, and they understand that, but by God's grace, we aim to honor Him in the things that come. And His grace is showing through.


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