I saw my Timmy today, but I didn't take a picture. I posted the one mommy sent this morning already. Last week while we were at the hospital 2 ladies (doctors, I believe) came by and asked how we were doing, and what we understood about Timmy's situation and care. We gave them the "Cliff's Notes" version, and they let us know they were there to bridge any gap in communications between us and the other hospital staff. Weird, awkward, but OK, they're trying really hard here.
This week, they stopped by and asked Jen several times if she was OK, how was she doing, etc. We're getting the idea that they may be on the psychiatric side of doctoring. They seemed surprised and unsure how to proceed since Jen actually is doing quite well. I'm not sure if that means that we haven't lost our minds, or are just too far gone for help.
I'll go with the 'not lost our minds' option. As we talked today, we agreed that if we tried to handle this situation on our own, we couldn't handle it. It is beyond us, overwhelming, however you want to put it. Admitting there is a problem is the first step to fixing it. I can't handle it. Jen can't handle it. But God promises grace for each day, and God delivers. We're not perfect. We don't have it all together all the time, but we're living above the level of mere survival. That is only by the grace of God.
As far as Timmy is concerned, he was looking good today, his numbers were all good. He isn't gaining much weight, but there seems to be an upward trend. The x-ray of the chest didn't show any change in the heart, and we didn't hear anything about an echo today. There is still a lot of uncertainty. There is still no talk of a goal date for even leaving the Pediatric ICU. And we are learning contentment in the midst of it all. Make no mistake, God is good.
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