Thursday, October 6, 2016

It was a nice day for a drive.

Even with all the wires and tubes, Daddy likes to hold and sing to his Timmy. The drive isn't getting any shorter, but it went by nicely today. Glad to be up for a couple of days.

No big changes. Weight remains more or less stable, despite increasing diuretics. They added a new diuretic today and think they have the right cocktail now. X-ray is scheduled for Monday to check in on progress with the heart failure status he is in.

On our end, we will be moving Jen's base of operation for the RMH upstairs to the RMH down the street a mile. A little less convenient, and new transportation to learn (shuttles and security) to get back and forth. But at least we will be settled while I am up here with the car, and we are really grateful to have a place outside of Timmy's room to get sleep.

Mom is getting used to living at the hospital for now, and knows we are not looking at days, and probably beyond weeks at this point. I will be heading home tomorrow to love on the children at home. I'm getting used to the new arrangement a little, I guess a part of me doesn't want to. Lots of help at home makes it possible. The kids at home have stepped up tremendously, and we are working at finding our balance in it.

Thank you for your continued prayers for all of us.

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