Timmy is still fighting congestion, and we are still making adjustments to see what works well.
We had been doing nebulizer treatments of Albuterol to help loosen junk and reduce inflammation in his airways to help him breathe. This was working well, until we noticed he was getting very restless and moving around a lot, especially at night. That's when we realized that the Albuterol was causing him to be agitated. We tried going without the Albuterol, but that caused his coughing to be worse, and his oxygen levels to dip. All this while lots of Timmy commotion at night means we were getting reduced amounts of sleep. Perfect storm of building frustration and concern for parents.
He seems to be getting over the pneumonia, but we'll find out better tomorrow when we see his doctor for a follow up visit. For tomorrow's score card, we have a dentist, an orthodontist, and a doctor visit to make it to with 3 different kids. On top of the normal Wednesday routine. At least we should find out if Timmy is improving, and maybe get some suggestions on helping him out without losing out on sleep.
Our VNA nurse suggested getting a home suction machine for helping clear his congestion. We are waiting to hear if that will be approved through all the proper channels, but it should help reduce the ongoing problem of Timmy not being able to clear the junk in his throat very well. Not just since he has had a cold & pneumonia, but since birth. It is one piece of equipment Jen has missed being able to use since leaving the hospital.
And now, for the best reason to check out the blog - Timmy pictures:
We continue to covet and appreciate your prayers. God has been very good and we are glad for the miracles we are able to witness in Timmy's young life. He is truly a blessing in so many ways.
I have pulmonary fibrosis , albuterol makes me twitchy And uncomfortable , kinda like I can't get comfortable . My pc switched me over to Perforomist , no more twitching , and a lot less discomfort , just saying
ReplyDeleteThanks! Fortunately, the doctor says his lungs are clear, so we've gone to skipping the nebulizer treatments and his oxygen is still staying up in the normal range. My parents stopped by with a couple dozen gifts from you today. Thanks!
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