Sunday, January 22, 2017

I seriously can't resist!


Sleeping, well, like a baby.


But just as cute awake.


Earlier, I just posted a 2 month home celebratory post. But we continue to be grateful for many things. Timmy has a long way to go in many areas - leg strength, sitting up, rolling over, normal milestones that tick off normally in a pretty routine fashion. In a movie I watched probably too often in my teen and early adult years, one of the lead actor says "...and you think a little head jiggle is supposed to make me happy?" For us, it continues to make us happy. When he holds up his head, when he grabs for things and plays with things, when he follows you with his eyes or turns his head, when he kicks with his feet - it all makes us happy.

We are making some adjustments at home with Timmy's care this week, starting to adjust his feeds to get him used to more regular type feedings instead of the continuous feeding we are doing now. It was an option when we first came home, but life was more overwhelming then. Now, the schedule has calmed down enough to add another aspect. He seems to be taking to the new feeding schedule well, and we pray that he will continue. It enables us to have him unhooked from everything more during the day now that his need for oxygen has been reduced. Since that is already disconnected, getting the feed tube off of him for several hours at a time is also a help in being able to carry him around the house and let him play on the floor more freely. Small adjustments over time are the route to get where we want to be, so we will continue to take it one day at a time.

Still praising God for the miracle of the human body and how well it can work despite several deficiencies in anatomy. It is mind-bogglingly amazing!



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