He looks so good!
Dr. Kitchen said it on Monday.
Dr. Orie said it on Wednesday.
The nurse from the VNA said it today.
They all say he looks really good. Good coloring, good muscle tone, he is really content, he moves around well, even going as far as to call him a little miracle. How else can you explain a terminally ill child with a medical 'rap sheet' that makes doctors say "Oh wow!" and "That is a complicated case," that acts and behaves more like a healthy child. His tests this week did not show any great improvement on how his insides are working, he is still in heart failure, he still has a regurgitation in the valve in his hear, he still has two good sized holes in his heart. But he is happy and healthy.
We are praying for our little miracle to turn into a massively huge miracle. (One that requires the surgeon on his case to do back flips down the hall) We are rejoicing for even the small miracles of a 'healthy' sick child. And we are enjoying all the smiles, snuggles, cooings and all the looks from our baby boy. The future isn't certain for any of us, but when we take it moment by moment, the choices are easy to make. Hold him, snuggle him, sing to him, play with him, and love on each other as a family. We are blessed.
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