It seems we go through pretty regular cycles. About every 2 weeks we have a health concern of some sort with Timmy. His food ends up leaking from the g-tube, he ends up not sleeping well, he ends up grunting all night long, he ends up sick, . . .
And then, he starts getting better, or we figure out what is causing him to not feel well and make an adjustment, and we have smooth sailing again. For a few days.
This round of congestion is knocking his oxygen sats way down. We are having to give him several doses of albuterol a day to help support his oxygen levels. The albuterol eventually makes it hard for him to sleep at night, but it is the option we have right now.
Even in this, we know we are blessed. We know some families that end up back in the hospital every 2-3 weeks. Timmy has been home for 4 months and 13 days. He has been almost 3 months since having a cardiologist visit. Being at home has its struggles, but we like this option over the alternative.
We would appreciate prayers that he will be able to sleep well, and that the congestion would clear up soon. He sees the cardiologist this Friday and we are hoping to find out more about what may lie in the future for Timmy. More about how his heart is doing. Is it improving? Lots of questions. But for now, just a desire to see him back to breathing easier.
No comments:
Post a Comment